Assessment of health-related quality of life in sarcoma patients

Monday 31 October 2022, 14:30
PhD defence
Speaker or Ph. D. student
D. den Hollander
prof. dr. W.T.A. van der Graaf
dr. I.M.E. Desar, dr. O. Husson
Faculty of Medical Sciences

Sarcomas are a rare group of malignant tumours, originating in bone or soft tissues such as muscle or fat, anywhere in the body. Symptoms and side effects of sarcoma and its treatment(s) have an impact on a patient’s well-being. However, there is currently no good way to measure health-related quality of life(HRQoL) with questionnaires specifically for sarcoma patients. This research showed that for assessment of HRQoL in sarcomas, one size does not fit all. Studies in this thesis found that location of sarcoma determined how HRQoL is affected, but also disease stage, treatment, and age. Therefore, questionnaires need to be tailored using location-specific items and lists of items that assess other issues. In addition to literature and questionnaires, online patient forums appeared to be a promising new source for input on important HRQoL issues. This way, sarcoma patients get a voice in research and clinical practice.

Dide den Hollander (1991) obtained her Master’s degree in Medicine at the Radboud University in 2016 after which she worked as a resident Internal Medicine. In 2019 she started with her PhD research as part of the Medical Oncology Departments (Radboud university medical center and Netherlands Cancer Institute) and Psychosocial Research and Epidemiology (NCI). Currently, she is working as resident Internal Medicine at the Canisius Wilhelmina Ziekenhuis.

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