Outcome measures after an aneurysmal subarachnoid hemorrhage

Monday 6 March 2023, 10:30 am
E. Janssen
prof. dr. R.H.M.A. Bartels, prof. dr. P.J. van der Wees
dr. H.D. Boogaarts, dr. I.L. Abma

In this thesis the modified Rankin Scale (mRS), one of the most frequent used outcome measures in patients after aneurysmal subarachnoid hemorrhage, was evaluated. It was demonstrated that the assessment method of the mRS influences the final score and that the mRS can’t measure a change in outcome during time. There are currently no sufficient questionnaires available for use in daily care for patients after aneurysmal subarachnoid hemorrhage. That’s why a new questionnaire was developed, together with patients and healthcare professionals. This questionnaire has 40 questions and addresses 14 possible complaints after subarachnoid hemorrhage. This questionnaire was implemented in daily care and the impact was investigated. There turned out to be no improvement in the quality of care. The interviews with patients and healthcare professionals suggest that the questionnaire can improve patient  preparation, the structure of the consultation, and the communication between patient and healthcare professional.

Edith Nobels-Janssen (1988) finished in 2013 her study medicine at the Radboud university and started in 2015 with her registrar training at the Canisius Wilhelmina Hospital in Nijmegen. In 2017 she started a PhD trajectory at the Radboud University Medical Center in Nijmegen, department Neurosurgery and IQ-Healthcare. Currently, she is working as a neurologist in the Radboud university medical center.