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Why it is important to look beyond the vision impairment of blind and visually impaired children

For many years now, a tried-and-tested formula in studies of children with vision impairment has been to compare their development with that of sighted peers. But does this approach do them justice? Researcher Carlijn Veldhorst exclusively tracked children with vision impairment in different age groups over several years and unveiled some striking insights. ‘The vision impairment is not the most important factor in their development.’

Is it fair, when conducting research, to compare children with vision impairment with their sighted peers all the time? This has happened a lot so far when measuring such things as motor skills, language competence or numeracy ability. “Those studies mainly emphasise the fact that these children may develop differently, not how they develop,” explains Carlijn Veldhorst. Her PhD research within the Department of Pedagogy and Education at Radboud University therefore focused exclusively on the development of children with vision impairment, without comparing them with sighted children. “Because it doesn’t always make sense to compare,” she says. “Unfortunately, we cannot take away their vision impairment. So, this study focused on their own development, to gain a better understanding of how they go through life.”

Veldhorst followed the lives of children with vision impairment intensively for two to three years, dividing them into different age groups: toddlers and teenagers. In contrast to research to date, she did not look just at the development of their skills and competencies. “Because there are more factors that determine whether children with vision impairment can participate in society,” she says. “There’s the role of parents and teachers, for example. But there’s also how children feel about themselves and whether they can express their own preferences. These are all factors that also contribute to participation.”

Portret van onderzoeker Carlijn Veldhorst

No difference in development

Focusing solely on the development of children with vision impairment meant that new insights emerged, according to Veldhorst. “Previously, it was assumed that children with vision impairment always develop differently from sighted children. However, our study shows that all children with vision impairment developed well; they all made progress. With toddlers, this means, for example, that they grasp objects or are able to name things. We did see a lot of variation among the children, though, which allows us to say that there is no such thing as an average child with vision impairment.”

Veldhorst came to a striking conclusion while tracking the children with vision impairment. “The vision impairment is not the most important factor in their development. They are actually shaped by factors around them,” she says. She mentions, among other things, the role of parents, social contact at school and guidance from centres of expertise such as Royal Visio and Bartiméus. “It’s those factors that make the children who they are.”

Parents and gaming

The study shows that the role parents play is particularly significant. “Many parents are hugely supportive, eager to help their child with vision impairment and come up with a lot of solutions,” explains Veldhorst. “But teenagers in particular expressed a desire to try things out on their own without an immediate offer of help. On top of that, they are going through puberty and may be struggling because they are noticing at school, for example, that they are different because of their vision impairment.”

One detail that stood out during the study was that several teenagers with vision impairment mentioned getting a lot of social interaction from gaming. “Not only does it give them enjoyment, it also provides a way to hang out with friends,” explains Veldhorst. “Gaming can therefore help them connect and broaden their network.”

The insights from Veldhorst’s research may help improve the guidance for children with vision impairment and their parents, while she notes that the children themselves indicate that they already have a positive view of the guidance they currently receive. But she still makes a few recommendations. “Many parents of children with vision impairment are overprotective. This is because both parents and children are not fully aware of what is possible in life despite the vision impairment. Role models, such as experts by experience, can support and inspire them in looking beyond the vision impairment.”

Another recommendation is to give teenagers with vision impairment more of a say in the guidance they receive. “Especially when it comes to participation and independence,” says Veldhorst. “It is valuable to hear what they themselves understand by those terms, so you can give them more targeted help.”

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Education, Upbringing