A tree in a field in early morning
A tree in a field in early morning

The meaningful moments before euthanasia

Duration
2023 until 2027
Project member(s)
I. Ceelen (Iline) MSc
Project type
Research

Let me tell you a story. Walter is 56 years old and very ill. His wife, two children, friends and family know that Walter is going to have euthanasia within three weeks because Walter wants to die with dignity among his loved ones. It is very important to Walter that his family can say goodbye in a proper way and cope with their grief. 

But what actually helps with this 'special' way of dying, knowing when it happens? How do they spend the last weeks or days together so that continuing to live on is as bearable as possible for the people Walter loves most? What 'special' or 'meaningful moments' are there? 

These are the questions I am researching and trying to answer, so that we can better guide those involved, such as Walter, his family and you, in the future.  

About this project 

This PhD project undertakes a study of the ritualization of assisted dying in the Netherlands. What do people do before they receive euthanasia? How do their last meaningful moments help them say goodbye? How does it help their next of kin? These and other questions I am trying to answer with the following research.

Goals

The project has three goals:

  1. Improve our understanding into the contemporary habits prior to assisted dying.
  2. Understanding what aspects of meaningful moments help those concerned.
  3. Providing better support to facilitate a ‘good death’. 

So far, there has been no sustained research into the ritualization of this contemporary form of dying. However, assisted dying is an important social phenomenon that has the potential to challenge the status quo of ritual studies. Mainly because assisted dying gives the ultimate control about circumstances and timing of death and thus its highly “plannable". 

Progress of the project

In 2022, the Dutch euthanasia law marked its 20th anniversary. Two years later, in 2024, 5.8% of all deaths in the Netherlands involved euthanasia (source: Regional Review Committees for Euthanasia). The Netherlands remains globally unique in legally allowing a self-chosen death—provided strict criteria are met. But how do people prepare for that moment? How do they shape their farewell, and what do they do, create, and share in the process? That is what I have been privileged to observe.

Now in its third year, this research project has brought me into contact with many remarkable individuals. Over the past twenty months, more than fifty loved ones have shared their experiences with me about the death of someone close to them who chose euthanasia. In addition, I had the opportunity to accompany 21 people intensively through the final phase of their lives—sometimes for several weeks, sometimes for months. I was allowed to be present in deeply vulnerable, brave, at times confusing, but often profoundly loving moments.

Not everyone passed away in the end—and that in itself taught me a lot. A terminal diagnosis can initiate conversations and choices, but it doesn’t necessarily mean the end is near. I witnessed how ‘extra time’ was lived—sometimes as relief, sometimes as struggle, often as precious.

In some cases, I was present in the final hours—occasionally even during the moment of euthanasia itself. Having previously witnessed first breaths as a midwife, I now found myself quietly accompanying the last. I was deeply moved by the openness with which people shared their stories and the trust they extended to me.

Now begins the phase of writing. In the coming period, I will begin to analyze the material, searching for patterns in how people shape their farewell: in what they do, make, say—and how they give ritual meaning to the transition from life to death.

Results

Scientific publications

  • Ceelen, Iline, Christoph Jedan, Derek Strijbos, and Eric Venbrux. 2025. “How (Not) to Let Go? Exploring the Current Ritual Repertoire around Euthanasia in the Netherlands.” Death Studies, November, 1–15. doi:10.1080/07481187.2025.2587749.

In the media

 

Ongoing projects

  • Book project: Mors Neerlandicastervensstijlen in Nederland. Expected publication: Summer 2026.

Presentations

Centre for Death and Society, University of Bath – CDAS conference juni 2025

From Planning to Presence: The Power of a ‘5-to-12 Death’ and the Emergence of Meaningful Rituals beyond the Euthanasia Day
The planned nature of euthanasia, also described as a "5-to-12 death," grants individuals and their loved ones a unique sense of agency, allowing them to actively prepare for the day itself. This agency can foster a deep engagement with the process, enabling the creation of meaningful experiences that reflect personal values and relationships. However, many of the post-euthanasia rituals arise out of spontaneous acts during the euthanasia day itself. Unplanned gestures and words, ordinary objects used in these moments, often acquire profound symbolic meaning, becoming anchors for grief rituals and facilitating a sense of transformed but continuous bonds with the deceased. In a secularised society like the Netherlands, where traditional religious frameworks decreased in importance, these emergent practices take over, offering a way to navigate loss and sustain connection through deeply personal and context-specific expressions of meaning. My research shows how the interplay of planned and spontaneous actions during euthanasia serves as a foundation for evolving ritual behaviour, highlighting their capacity to provide comfort, continuity, and agency to the bereaved in a secular context. These practices reveal the transformative potential of the euthanasia process, bridging the moment of death with enduring rituals that support grief and memory.

17th Death, Dying and Disposal Conference, Utrecht. August 2025

Rituals for whom? Distinguishing between mental and physical illness ritual behaviour in euthanasia
People in the Netherlands seeking euthanasia for mental illness and those with physical diagnoses exhibit distinct end-of-life rituals. One involves elaborate planning to ease loved ones’ burdens and justify the decision, while the other focuses on personal processes of dying without explanation.

Funding

Funding for this research project is provided by Radboud Universiteit.

Contact information